Archive for the ‘About Rory’ Category



On February 2, 2011 we finally got the call that there was a viable kidney offer for Rory. After a very long day of tests and waiting, he went into surgery around 6:00 that evening. Everything went perfectly and he is currently in the “home bound” phase of his recovery…which basically means he cannot be anywhere but our house, our car and the hospital. He has had infections twice that have required IV antibiotics and hospitalization; but that is largely to be expected for a kid who has both a permanent catheter and a suppressed immune system.  You can view an album of photos from the day of his transplant below, but for now, please know that he is no longer on dialysis and is recovering beautifully, all things considered.


Hello world!



He's a great kid to know.


This is Rory. He just turned 11 years old and is in the 4th grade. He likes video games, sharks, learning about the weather and anime. Rory lives with his parents and his sister. His Daddy is an Iraq Veteran who currently serves as a full-time aircraft mechanic in the Michigan Air National Guard. His Momma recently got a wonderful job at a nonprofit agency in Detroit and his sister is a full-time college student studying to become a pediatric Occupational Therapist.

Rory has something called Hinman’s Syndrome, which was not diagnosed in time. Because of this delay, Rory’s kidneys were badly damaged before he got the help he needs. He is in Stage- IV End-Stage Renal Failure and recently received a kidney transplant that will allow him to stop having to do dialysis every single night. Being on dialysis made Rory feel very cranky and sad. Rory is so happy that his new kidney has arrived, and is truly grateful to the donor who gave him the gift of life.

Rory was on the transplant list for over a year before we got the call. He almost got his transplant in February of 2010, but it didn’t work out. If you have followed Rory’s progress on this journey and would like to have the same life-changing impact for someone else, please check out the “Donor Info” page. If you would like to learn more about how you can support Rory and his family as they navigate the many medications, hospitalizations and days off of work that his new kidney brought with it; you can donate to the Rory Fund by visiting the “How to Help” page for donation info and lots of other ways to show you care.

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